Help with Epidermolysis bullosa
Request an offer for help with Epidermolysis bullosa here!
Epidermolysis bullosa – Symptoms and Treatment
Epidermolysis bullosa is a rare, genetically determined skin disease affecting approximately 500,000 people worldwide. The care of those affected is even a challenge for the Alpha Wundexperten. In patients, the epidermis adheres less well to the dermis. Even a small impact or very light friction from clothing is enough to cause blisters to form on the skin surface. Treatment requires comprehensive wound management. This is particularly important because there is a high risk of infection due to the damaged skin surface. We must therefore pay attention during wound care to whether germs are changing the appearance of the blisters – that is, whether they become purulent, wet, and red at the edges.
Epidermolysis bullosa junctionalis, Epidermolysis bullosa dystrophica and Epidermolysis bullosa simplex
The clinical picture varies in severity among the different forms of Epidermolysis bullosa.
Treatment process or Course of treatment
Our comprehensive service for optimal wound healing
A structured treatment process is crucial for the fast and complication-free healing of wounds. We provide personalized care to optimize the healing process.
1
Consultation & Assessment
The first consultation includes a thorough examination of the wound as well as a medical history to optimally plan the healing process.
2
Individual Treatment Plan
Based on the examination, an individual treatment plan is created, taking into account the patient’s specific needs and risks.
3
Treatment & Monitoring
During the treatment, the wound is regularly monitored to ensure healing progress and to make necessary adjustments.
4
Follow-up & Care
After the treatment, regular follow-up is provided to detect potential complications early and to support long-term healing.
Epidermolysis bullosa in children and Epidermolysis bullosa acquisita
Epidermolysis bullosa, like Marfan syndrome, is a rare, hereditary disease. Certain defective genes prevent the formation of proteins that ensure cohesion between the different skin layers. The first symptoms appear from birth or in childhood. Young patients are often called “butterfly children” because their skin appears as fragile as a butterfly’s wings.
Epidermolysis bullosa Acquisita, or EBA for short, is a special form. This rare blistering autoimmune dermatosis usually occurs only between the ages of 40 and 60.
Epidermolysis bullosa can also affect the mouth and throat
Since Epidermolysis bullosa also occurs on mucous membranes, the mouth, throat, and even the intestines can be affected. Our experts therefore also pay attention to signs of disease that indicate mucosal damage in these body regions.
Complex wound care at home after surgery
Home wound care requires particularly extensive expertise when it comes to treating a surgical wound. Our experts know how to support wound healing after an operation. Naturally, the primary wound care takes place immediately after treatment in the hospital. We ensure the continued wound care at home.
Epidermolysis bullosa simplex – Wound Therapy
Unfortunately, there is no cure, so wound management is aimed at alleviating symptoms and minimizing complications. Treatment includes regular dressing changes in a highly aseptic environment. To prevent further damage, we usually cover wounds with a sterile compress, which we fix with a loose bandage or a tubular bandage. We also provide care for burns and surgical wounds in this way.
With junctional or dystrophic Epidermolysis bullosa, healing is often delayed and there is a risk that a lesion will develop into a chronic wound. Through careful wound care, we try to prevent this course.
Tips for Alleviating Suffering from the Alpha Wundexperten
Help for Relatives and Affected Individuals
The URGO Foundation has launched projects to improve the quality of life for patients suffering from Epidermolysis bullosa. These are also intended to improve the quality of treatment.We are also a good contact person who will assist you with advice and support. Contact us via the contact form or call us at 030 / 600 33 977, or send an email (info@Alpha Wundexperten.de).
Always at your service
Call
Directions
